Tuesday, February 5, 2013

1 week left!!!!

Our precious Sophie has 1 week left of radiation treatment!!! 5 more sessions, to be exact. Next Tuesday will be her last day!

We are planning a few different events as celebrations and/or fundraisers:
  • After her last radiation treatment, we'll be heading to the Wheaton Chick-fil-a for a celebration lunch. We're primarily targeting Sophie's schoolmates, church classmates, and other small people so Sophie can share a meal with her friends. But if you are in the area, come on by and celebrate with us. We'll probably be there from 10:30ish to maybe 12:30?
  • A "Spirit" Night at the Wheaton Chick-fil-a: sometime in late Feb, from 5pm-8pm. A portion of the proceeds will go towards Sophie's medical expenses.
  • Wine tasting event: planning for Sat, 2/23, would be a professionally hosted wine tasting & food pairing event in the city with a focus on Sophie and pediatric brain tumor awareness. It's both a social event and a fundraising event. If you cannot make it, but would like to make a donation, you can click on the wepay link. The event is limited in size, so let me know if you'd like to come!
We also headed downtown today for our 5th clinic visit, and her 5th dose of vincristine. Here's what will happen after her radiation finishes next week.
  • We have a 4 week break from any treatment, hospital visits, etc. She will still probably take miralax (for constipation), periactin (for appetite stimulant), and zofran (for nausea).
  • We'll try to get her back in school. Not sure it will be 3 days/wk like before, but as much as she can tolerate.
  • She'll still go to rehab when possible, 2-3x/wk.
  • Post-radiation MRI will be in early March, hoping for NED! (no evidence of disease)
  • Maintenance chemotherapy will start in early March. There will be 9 courses of chemo, either 6 weeks or 4 weeks apart. There will be 4 different chemo drugs given in different sequence.
Soph also maintained her weight from last week, which is good news too! Her doctors, Dr. Jason & Dr. Becca, are very, very pleased with her overall progress. They say she has improved in all facets of her recovery. She has made huge strides in her walking. She's much more stable and wants to run!

Thank you all for your prayers. We're still in the early stages of this journey, but one big milestone is coming up and we are looking forward to it!

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