March madness

So my Wolverines flamed out in the BTT, but I'm still hoping for a 3 seed and favorable path to the Sweet 16!

So the first chemo has come, not sure it's gone, b/c the affects of it continue on. Soph was in very good spirits the time she was in the hospital. She kept busy with the iPad, DVDs, puzzles, etc. She didn't eat much, but had fluids in her the whole time. Jeannie and I were ok too. Selah stayed at RM house with my mom, and had a grand time eating and playing.

As suspected, the MRI came back NED (no evidence of disease). I asked our neuro-oncologist, Dr. Jason, which MRI should we be most worried about. It would seem to me that the first MRI post-radiation should be clear. And he confirmed, usually this first MRI is typically NED. He says 7-8 months down the line is the one where tumor signs would show up, if it were to recur. That takes us to about Nov/Dec of this year, when we pray/hope for NED.

The bigger issue in our household this past week/end, is that Jeannie and I are sick. I have the worst case of the flu that I can remember. 100+ fevers for 2.5 days. I barely left the bed yesterday, and I'm quarantined in the bedroom, so as not to get Sophie sick. Jeannie also has a cold of sorts, combined with brief case of food poisoning (we think). It's been a rough weekend for us. My theory is that it's from subconscious stress from the past week.

Soph is on TPN, which means she's hooked up to a nutrition bag overnight. It gives us peace of mind that we know that she's getting everything her body needs, albeit thru IV, not thru her gut. Jeannie and I have had to learn to administer, connect, clean her port and TPN. It's something you never thing you would have to do it, but here we are. Consequently she doesn't eat much during the day, except snacks and her anti-nausea meds thru juice.

The good news in all of this is that Sophie seems fine. She's been at home since Weds night, but doesn't seem to mind. She's in good spirits, and has been able to avoid sickness, so far. She's been smiley, happy for the most part. Selah is fine too. We thought she was getting a bit stir crazy, so we sent her off to church with friends this morning.

We'll have to go downtown again on Tuesday for her vincristine chemo push, b/c the hospital had some safety concerns with home health administering chemo. Otherwise we hope to kick this flu/cold out the door and move on.