Thursday, January 3, 2013

1 down, 29 more to go

So we barely scraped through day 1 of radiation treatment, Jason going back to work, rehab.

Most of the day went by ok. Soph was in by 6:30, out of proton by 9:45. Back home for a few hours, then off to rehab for another hour or so. She was fine for the rest of the afternoon, but then around 5:30, she started complaining of head hurts, neck hurts, dizziness, double vision, and wouldn't eat anything. She was on the couch for an hour or so while we made calls, debating whether or not to take her in. I was leaning towards putting her to bed since she'd be back at proton 6:30 the next morning, and Lurie by 10:30.

The clincher was that it seemed that all of her symptoms were the same as that Sat, Dec 1 night when we rushed her to the ER to find out about the cancer. Lurie oncologists recommended we get a CT scan, so we decided to go to CDH in hopes that they could treat her and hopefully avoid a trip downtown.

Took her to CDH where they hooked her up to an IV, took blood, and got a CT scan. Halfway thru the 3 hrs there, she seemed to feel better, looked better, and we found out that the scan was clear, bloodwork normal. It took forever to get discharged, but we finally got home at 11:15pm.

Unfortunately, she still had to wake up at 6am to get to Procure by 6:30. Doctor thinks it might be some irritation in the area of the brain where she got radiation. Jeannie and Sophie will be off to Lurie right after proton therapy for a visit with the neuro-oncologist where we'll finalize the overall treatment plan. Soph will also have to get a hearing test today.

It will be another long day. Please pray for strength for both of them and minimal irritation/side effects from the radiation.

On a lighter note, it appears our Selah is potty-trained! She's been peeing regularly in the potty. After I took her last night, she proudly proclaimed, "Appa, I go potty. I big girl now. I potty training."

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