We are in week 3 of proton radiation treatment, up to 11 sessions now, (counting today, 1/15). 11 out of 31. So we are 1/3 of the way to the end of radiation. Soph has been a trooper, waking up at 6am, Mon-Fri. This week is a bit different in terms of timing, with Tues appt being at 8am, and Fri at 11:15. That Fri will be hard b/c she will not be able to eat until after her appt, and given that we've had a tough time getting her to eat, telling her no if she asks for food will be tough.
Otherwise, we are on our schedule of Tuesdays downtown for clinic visits where she gets her chemotherapy drug, vincristine, and gets checked out by the neuro-oncologists. With the commuting, waiting, it ends up being a pretty full day. Today we are here later b/c radiation started later and she is getting a pneumonia vaccine. Will probably run into rush hour traffic on the way home.Ugh.
Sophie will also get a brace this week, on Thursday. It will help her from hyperextending her knee, and in general, will help correct her walking.
The weekend for Selah and I was nice, in Washington DC for my sister Cindy's wedding. It was bittersweet though, as we felt only half there, leaving behind Sophie & Jeannie back in Chicago. Thank goodness for facetime! Thankfully we also had my parents travel with us to help with extra hands to/from DC. Selah was the flower girl, and got a bit nervous walking down the aisle with lots of people smiling/staring at her. She insisted grandma walk down with her until she got closer to me. But she did great over the weekend, little complaining, and had a fun time with everyone. I was apologizing to Cindy and brother-in-law Bob for stealing their thunder, but Bob countered with, "she actually enhanced the thunder." Here are some pics from the wedding below:
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| We made it to DC! Napped on the plane to boot! |
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| Hanging out in the courtyard of the National Portrait Gallery. |
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| Walking around DC with Cindy gomo |
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| The many faces of Selah Cho |
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| Supervising gift bag production. Future supply chain professional! |
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| The newlyweds at the rehearsal |
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| Calvary Baptist Church |
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| Selah ready for the wedding! |
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| The bride before the ceremony. |
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| My 2 lovely sisters! |
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| Making sure Uncle BooBoo knows what he's getting into! |
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| Getting married! |
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| Didn't get to eat the cake b/c Selah had to go to bed, but it looked delicious! |
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| Pic with the newlyweds! |
Jason - I had to fight back tears when reading about the trials your sweet little girl and your family are going through. I can somewhat relate. Our 22 month old triplets were born early and were all under 2 lbs with numerous life threatening complications. There was NO WAY we could see those tiny babies making it. On top of that, months of hospital time away from your other children is very trying! Through countless prayers of family and friends and the grace of God we made it through. I will keep your family in my prayers. God Bless
ReplyDeleteJason Moll