Friday, December 7, 2012

Happy Birthday!

Today is Jeannie's birthday. It's not the way that any of us imagined it to be, but here we are, and we'll make the most of it.

Not much more of an update on Sophie. She's still recovering from her surgery. She hasn't talked as much as she did the first few days; they think it's part of the surgery side effects they refer to as cerebellar mutism. She's tired, doctors/nurses/therapists walk in all day, poking, prodding, checking, and it's really hard for her to get some rest. We are going to start to assert ourselves a bit more to not bother her when she's sleeping whenever possible.

She still has an EVD (external ventricular drain) that they are constantly monitoring, since the tumor blocked normal drainage of her cerebrospinal fluid.

Otherwise we are trying to get her on a somewhat of a schedule of reading, sitting up in a chair, therapy, TV, etc.

Selah has joined us downtown as of yesterday. My mom is here through the weekend to take on primary care duties for her. Not sure how it will work out with her being here, but at least we can see each other more easily.

As always, it's always nice to read messages that people are praying for us, thinking of us. We may not necessarily be able to respond, but please know that it really helps us. We're still in shock mode much of the time, and our faith is not quite to the point where we can pray the miraculous prayers, so we are relying on the faith of all you to pray those prayers, while we try to support Sophie as much as possible.

1 comment:

  1. Hi Jason and Jeannie,

    My heart, thoughts and prayers go out to you guys.

    Jeannie, a very happy birthday to you. This whole thing reminds me how precious everyday is. I hope you savor it as you go through this trial.

    Let me know if you need anything from me and my family.

    Blessings,
    Dan Chung

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