Monday, December 24, 2012

Twas the night before Christmas...

It's been a nice 6 days at home. Soph went to rehab on Fri, the first half of occupational therapy that went well. The second hour of physical therapy, not so well. She was getting tired, and the therapist went a bit too far in getting in her personal space. This morning we went for a speech evaluation, and that hour went well. She's still pretty wobbly, can't walk without assistance, but she is determined to keep trying on her own. It's heartbreaking to hear her, in her moments of calm, when she says, "I want to walk like Selah, like how I walked before I went to the hospital." We keep telling her to keep trying every day, and that Marianjoy will help her.

We also made it out to church on Sunday. Originally we were going to send Selah with some friends, but as Soph saw Selah get dressed, she wanted to get dressed. Jeannie put her in a dress, and we thought she'd just wear it at home. But then she made her way downstairs, and started to try to put on her shoes. I asked her where she was going, and she told me, church! We tried to tell her that she should stay home and rest, but she wouldn't have it. So Jeannie, my sister, and I scrambled to get dressed, cancel Selah's ride, and head off to church. We didn't stay the whole time, but I think it was good for her to be there.

This week should also be fairly quiet, with probably a few rehab visits on Thurs/Fri. We have not yet heard from Procure on an official start date for radiation, but we are presuming Weds, 1/2, which is also the first day I'll be heading back to work.

Otherwise, we are trying to enjoy our time together. Soph still gets very angry, frustrated, especially when she can't move her left arm the way she wants, or can't be as mobile as she used to, but we are surviving. We are trying to get the girls back on their normal sleep schedule. Selah is having a tougher time with naps, insisting that someone stay in her room until she falls asleep. My sister left yesterday, so we are on our own until next Tues, when my mom comes in to help around the house & watch Selah when Jeannie/Soph head to radiation, rehab, or clinic visits downtown. Much thanks to those who have brought us meals while we've been at home. Definitely can feel the love and support thru food, messages, emails, texts.

Merry Christmas to all.

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