Thursday, December 6, 2012

The diagnosis...

So we met with the Neuro-oncologists yesterday to confirm the diagnosis of medulloblastoma, specifically anaplastic, a particularly aggressive type of brain cancer.

We outlined a rough treatment plan:
  1. Recuperate and recover for 3-4 weeks
  2. Repeat spinal MRI to ensure no tumors in the spine
  3. Get spinal tap to test for tumor cells in spinal fluid
  4. Insert a port (think semi-permanent IV, "portal" to your body) for future ease of treatment
  5. Start radiation therapy
    • Mon-Fri for 6 weeks, ~15-20 min sessions
    • Weekly clinic visits
    • Target the whole brain and spine
  6. 4-week break with no treatment
  7. MRI
  8. Start chemotherapy
    • 6 cycles of chemo, 28 days apart, will last about 6-7 months
    • 2-3 days for each cycle at the hospital
  9. MRI every 3 months after treatment
  10. Live a full, happy, spunky life
It's daunting. I wish I could just fast-forward thru 2013. But we will get through this. There is no other option. 

more to come...

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